PC & SC report
Bjorn and Jernej reported what was discussed in the PC & SC working group:
The MOCHA project was presented by Stefano del Torso. In each country, a country agent is appointed responsible to gather specific data. The EAP national delegates were asked to contact and if needed support the appointed country agent in his/her mission.
A shared vision (between EAP- Europen academy of Pediatrics, EPA- European Pediatric Association and ECPCP- European confederation of primary care pediatricians) of improving community and primary care services for children, adolescents and their families in Europe. This project was initiated by the three organizations at the EAPS congress in Barcelona, Oct 2014. A working group of Simon Lenton (EPA), Gottfried Huss (ECPCP) and Björn Wettergren (EAP) has worked with a draft to be assigned by the presidents of the three organizations.
The working group is now close to finalize a draft. However a key questions still remains to be solved where ECPCP and EAP is in favour of having the document written in line with the statement of the EC of EAP presented in Lancet 2015, which means mentioning paediatricians as those doctors who should preferably take care of children. EPA has been persistent reluctant to this. The American Academy of pediatrics also used this wording when they published their statement in American Journal of Pediatrics in 1992.
Another topic was the problems of the paediatric primary care at the European level and in various European countries.
We discussed the problems faced by fellow paediatricians at national level, and are common to most EAP member states. The following problems were exposed:
- Increasing the wishes and interests of various professional groups according to treatment of children and adolescents (Midwifes in France alone examining new-borns, children at the age of one year, independent advising on the vaccination, independent advising on adolescent contraception) – a setup of minimal standards should be done
- Problem of movements against vaccination, on a European level
- Incorrect information that parents receive on the Internet
- Migration of doctors for economic reasons
- Pressure on policies that would allow a greater number of specialization in Paediatrics, on a national level.
- The problem of dealing with migrant children – colleagues want to learn more about the particular method and approach to children from different cultural backgrounds
A need for Minimum standards in paediatrics for someone who takes care for children and adolescents- from nurses to general practitioners.
All Common problems in paediatrics- prepare a statement on this matter, which would be discussed at next meeting in Dublin.
Future forms of the Primary and Secondary care Working Groups within EAP.
It has been suggested to merge the two groups under the heading “community paediatrics” or “general paediatrics”. In the following discussion it was concluded to continue with the current organization and instead focus on redefining the identity of primary and secondary care. Jernej and Björn were asked to work on new definitions and present their results at the PSWG in Dublin 2016 for further dialogue.
Primary/community paediatric care as a subspecialty? Pros and Cons were discussed. A working group was chosen to work further with this issue and present their results at the PSWG in Dublin 2016. The appointed group members were Karin Geitmann, Angel Carrasco Sanz, Manuel Katz, Jernej Zavrsnik, Björn Wettergren and it was suggested to also contact Gabriela Kobatova.
A statement concerning passive smoking. A draft has been written by Jonas F Ludvigsson current president of the Swedish Paediatric Society. It was concluded that PSWG support the draft and that it should be passed to the EC of EAP for completion.
Can we identify a common set of data monitoring the health of children and adolescents and can such data be coded in a way that they can be identified in different information systems? This problem was exposed when we tried to collect data on rare diseases, where we encounter different registers, which were not comparable with each other. This is a question primarily for a variety of computer companies selling EHR programs. The issue will be discussed at the group of rare diseases.
It was mentioned that if the 2 working groups would like to merge, it must be first changes in the status.
In the ethics groups meeting, there is a new set of EU regulations concerning data transfer. We cannot hand out data without permission of the patient / parents.